Hello, we are Rob and Holly. Our child Brock was diagnosed with a cleft lip and cleft palate at our 17-week ultrasound. Our family's journey to gain understanding and to ensure the best care for our son began that day!
Our goal is to bring awareness and compassion to those affected by orofacial clefts, which can cause many physical challenges but does not affect a child's smile or spirit. We hope also that, by sharing our story, we can inspire others to support the research and treatment of clefts.
When we first learned that our second child would be born with a cleft lip and palate, we were overwhelmed. Although the doctor assured us that clefts can be repaired and shouldn't hinder our baby from doing anything he would want to do in life, we knew very little about the condition.
The next few months were full of emotion. We spent many hours conducting research, interviewing physicians, and making phone calls in preparation for the arrival of our sweet boy. We also learned Brock would have to endure multiple surgeries, orthodontic devices, and therapies until about the age of 18. We were heartbroken and overwhelmed.
However, once we met with Dr. William Magee from Children's Hospital Los Angeles, we were overcome with so much peace and joy. He provided us with immediate assurance and has walked us through every step during Brock's first years of life.
Following the birth of our precious boy, we had to overcome some of the common hurdles of having a baby with a cleft, including learning how to feed him and some of the difficult steps needed in preparation for surgery.
After his first surgery to repair his lip, Brock came out with a bruised up little face but the cutest and most perfect little lips though we felt the heartache of losing Brock's first smile that we loved so much. Our story goes on with plenty of challenges ahead of us, but Brock continues to surprise us--and God continues to pour out His unfailing love on us.
Children's Hospital Los Angeles will always be the place where our son's life was transformed. Dr. Magee is always striving to develop new ideas and techniques to enhance the treatment that could potentially benefit Brock and so many other children. CHLA provides exceptional care to so many children. Yet, much work remains to be done to study and identify ways to further improve the treatment of orofacial clefts, to treat even more children with limited access to care, as well as to discover the underlying causes.
How You Can Help
Because of the extraordinary care we received, we ask that you join us in supporting the work and research of Dr. William Magee at Children's Hospital Los Angeles. Thank you!